Unmasking the Many Faces of PCOS Unmasking the Many Faces of PCOS

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9 minute read Updated on 2nd September 2025

Unmasking the Many Faces of PCOS

Written by Vasiliki Anastasopoulou

September is PCOS Awareness Month 2025—let’s raise awareness together.

PCOS is one of the most common hormonal conditions, yet it’s still widely misunderstood, both in medical care and everyday language. Even its name is misleading: “Polycystic Ovary Syndrome” suggests that ovarian cysts are the defining feature, when in reality they may not be present at all. 

Experiences vary widely. One person may experience irregular periods, while another may notice weight shifts, acne, excessive hair growth, or fatigue. None of these signs makes the condition “less real”, but they reflect how differently PCOS can appear from person to person.

A survey of 844 women tracking their hormones with Mira Hormone Monitor highlights the gap between awareness and understanding: 94% had heard of PCOS, but fewer than half reported a good understanding of it. Surprisingly, only 5.8% first learned about PCOS in school or university, showing how poorly sex education prepares people for real hormonal health challenges.

Hormone testing can help translate symptoms into patterns you can discuss with a clinician, and lived experience adds context that numbers alone can’t provide. Together, these perspectives offer a clearer view without reducing PCOS to a single story.

What PCOS Really Is

Polycystic Ovary Syndrome (PCOS) is an endocrine condition that affects how the ovaries function and can influence the menstrual cycle, fertility, metabolism, skin, and mood.

It is not one set of symptoms, and two people with the same diagnosis may share very little beyond the name. The term itself is misleading: “polycystic ovaries” suggests that cysts are the defining feature, yet they are neither required for diagnosis nor always present. 

Today, clinicians use the Rotterdam criteria to diagnose PCOS. A diagnosis is made when at least two of the following three signs are present:

  1. Irregular or absent ovulation (often seen as irregular or missing periods).

  2. Clinical or laboratory evidence of excess androgens (such as acne, hair growth, or elevated hormone levels).

  3. Polycystic ovaries are visible on ultrasound.

Because only two of the three are needed, PCOS can look very different from one person to another. One person may struggle with irregular cycles and acne but have no ovarian cysts, while another may show polycystic ovaries on ultrasound but few outward symptoms.

Delays in diagnosis are common. In our survey, one in four respondents reported that it took more than five years from the onset of their first symptoms to an official diagnosis, while three in five had to see two or more doctors to receive a diagnosis; all while many are still awaiting one. 

Before diagnosis, confusion was widespread: 64% thought their symptoms were just PMS, 63% blamed stress, 45% assumed genetics, and 44% believed they were making bad lifestyle choices. This misunderstanding not only delayed medical care but also added guilt, frustration, and self-blame.

These long journeys reflect not a lack of effort, but the complexity of a condition that rarely presents itself in the same way twice.

PCOS in Numbers

Behind every number is someone’s experience, and our survey highlights just how many ways PCOS can touch daily life:

77% reported irregular or missing periods

For many, this was the first sign that something wasn’t right. Yet, concerns about menstrual cycle changes often went unaddressed for years, leaving people to search for answers on their own.

70% struggled with weight changes

These shifts are often misunderstood or dismissed as lifestyle issues. Many respondents shared how frustrating it felt to be blamed for something rooted in biology rather than choice.

64% experienced excess hair growth, and 63% faced fertility challenges

These symptoms extend beyond health. They influence self-image, confidence, and long-term planning—sensitive areas that can be difficult to discuss even with close friends or family.

61% reported fatigue, and 60% mentioned mood swings, anxiety, or depression

These responses show that PCOS is not only physical. It is a condition that can affect energy, focus, and mental well-being, adding another layer to the challenges people face.

The road to diagnosis is often long

More than half of respondents reported that their symptoms were dismissed by a medical professional, and nearly one in four waited more than five years for a diagnosis. On top of this, 57% said that the hardest part of living with PCOS is the lack of clear guidance, showing just how much people long for reliable information and consistent care 

Amid these challenges, one truth stood out clearly: every case of PCOS looks different. This message matters because it shifts the focus from stereotypes to lived experiences, and each of those experiences deserves recognition and care.

Stories Behind the Numbers

Survey results reveal patterns, but personal stories show what those patterns mean in daily life. These voices from our community remind us that PCOS is not only a medical diagnosis, it’s lived every day, with challenges that reach beyond numbers on a page.

Ashley, 28

As a veterinarian, Ashley understood hormones in animals, but found her own body far more complex to interpret. Irregular cycles left her uncertain month after month. When she began tracking her hormones, patterns became visible:

“One of the biggest revelations Mira gave me wasn’t just timing; it was understanding. I learned that my PCOS symptoms actually worsened around ovulation. It wasn’t just in my head. There was a reason. My hormones were doing something, and now I could see it.”

Within a month, Ashley conceived. Today, she plans to use Mira again in the future, not only for pregnancy planning but to monitor her hormone health more broadly. For her, data turned doubt into clarity, and clarity into confidence.

Shalize, 33

Diagnosed as a teenager, Shalize lived for years with uncertainty and the pain of infertility. What changed for her was seeing that her cycle, while irregular, still had patterns she could recognize and share with her doctor.

“I never knew what was happening in my body... We are already enough. Not because of what we achieve, or whether we become parents. But because of who we are, together.”

For Shalize, testing was not about erasing every challenge, but about replacing confusion with something measurable, a way to feel less alone in her journey.

Kiera, 29

Kiera had spent years hearing conflicting advice while struggling with irregular cycles. Joining Mira’s Hormone Health Clinic gave her both clear data and personalized guidance. For the first time, she could see her cycle as a pattern, not a set of disconnected symptoms.

Within three months, she had the clarity she needed, and soon after, a positive test result. For Kiera, the combination of data and support provided a sense of direction she had been missing for years.

Testing and Support

Living with PCOS can feel like piecing together symptoms that don’t seem to belong to the same puzzle. Irregular cycles, fatigue, weight changes, or mood shifts may appear unrelated, yet each reflects how hormones influence the body.

In our survey, 78% of respondents said that at-home hormone tracking helped them the most in making sense of PCOS. For many, it provided structure where there had only been scattered symptoms, revealing patterns across cycles that might otherwise have remained hidden. This type of data can also facilitate more constructive conversations with healthcare providers, shifting the focus from isolated complaints to a more comprehensive picture of what is happening in the body.

Support is just as important as the numbers. Some people find it in online communities, others through practitioners who take the time to listen, or through structured care programs. Wherever it comes from, the combination of insight and guidance turns information into confidence — and for many, that’s the turning point between feeling lost and feeling equipped to move forward.

How Mira Helps

Living with PCOS can feel unpredictable, especially when cycles don’t follow a clear pattern. Standard trackers often assume a “typical” cycle, which doesn’t reflect the reality for many with irregular patterns. Mira Hormone Monitor is different because it measures actual hormone levels — LH, FSH, E3G, and PdG — using lab-grade fluorescent technology that’s 7× more accurate and up to 6× more sensitive than other fertility trackers, built for real, complex cases like PCOS and irregular cycles.

 

 

Instead of a single snapshot, Mira creates a full cycle view, showing how hormones rise and fall together. This makes it possible to detect ovulation when it happens, see trends in cycle balance, and track changes that affect energy, mood, or overall health. Backed by science, Mira is validated by leading universities, recommended by 2,000+ healthcare professionals, and named the #1 Fertility Test for PCOS by Medical News Today.

Finally, results are shown as an easy-to-read timeline you can use for yourself or share with your doctor. For many, that means real outcomes: Mira helps users with PCOS get pregnant in less than 5 cycles. And beyond fertility, Mira empowers women with better health insights: 

  • 97% feel more in control of their health

  • 91% better understand the root cause of their symptoms

  • 86% say Mira’s data makes their doctor visits more productive. 

Combined with Mira’s educational resources and community support, it’s designed to make hormone health clearer and more actionable. 

Moving Forward Together

PCOS appears in many forms, but across all experiences, one theme is clear: the search for clarity. Too often, people spend years looking for answers while symptoms disrupt their health and quality of life.

Insights from our community show that clarity comes from more than a diagnosis. It comes from seeing patterns, finding support, and knowing that your story is valid, even if it doesn’t look like anyone else’s.

Each voice adds to the picture. By sharing openly about PCOS, we move beyond stereotypes and bring forward the realities of a condition that is as varied as the people who live with it. In doing so, we make it easier for others to find recognition, answers, and care sooner.

 

👉 Learn more about PCOS and how Mira can support your journey here.

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